Update Sunday 7th June 2009 - Bernie and Sarah
Jo had her last assessment at the Churchill and was given the bad news, things have steady progressed especially her stability and use of her right hand, which is now practically disfunctional.

They have upped her medication in the hope of improving her speech, however, the difference is insignificant. The MacMillan nurses come in regularly and are excellent. We have found their service valuable, and we are very grateful for their help.

Jo has got a respite week at the Katharine House Hospice beginning Friday 26th June to Friday 3rd July, and plans are being made for Bernie to go with her. Both Bernie and Jo would love to see you whilst they are at Katharine House, but it might be an idea to ring the hospice to check visiting times and whether it's OK.

This is Sarah - the MacMillan Nurse advises that she feels it is better that Jo has only up to 3 visitors a day, as she is getting very tired. The effort she has to put into speaking is really exhausting, so please could you ring Bernie first if you are intending to visit, just to check that she's up to it. She is still really keen to see you all, but we just have to be a bit careful. We have a laugh trying to understand each other, and a few good games of charades have come out of it!!!

She's a brave woman and I admire her so much for her courage and determination, and still insists on being as independent as ever. Her dogs, Jessie and Milly are protecting her and giving her constant happiness. She was pottering about in the garden last weekend and the garden looks beautiful as ever. Her appetite has improved since the increase in medication, and it's good to see her eating - her jeans are slipping off her!!

Continued thanks to the dog walkers, and all those who have been helping to keep the house in order, and Ashley and Debs for helping Bernie start to clear the garage, no mean feat I can tell you!!! Bernie tells me that he's sure his collection of wood, rivets and golf balls will come in handy one day!! I think if everyone that visits sneaks a couple of golf balls into their pockets then we should have cleared them by Christmas.

We will keep you posted - watch this space

Bernie & Sarah xx