What I am up to

Wednesday 28 January 2009

Some Good News for a change, 1531 hrs. 28th

Today is Jo's 56th Birthday and the day we get the diffinitive results and treatment plan, the appointment is at 1230 pm.

We had the meeting as planned with the oncology nursing specialist and the Neurosurgeon,
and the good news is the Doctor told us that Jo can look forward to a year to 18 months.
She will now undergo Radio therapy which lasts 6 weeks, with another 6 weeks to recover which may even extend her life a bit longer

The Tumour is the size of a Golf ball. and it is considered inoperable

Saturday 24 January 2009

Jo Update 1100am Sat. 24th

I brought Jo back home on Thursday evening. The hospital sent her home to await the out come of the consultants meeting on Tuesday 27th Jan - this is a panel of Neuroloigists, Neurosergeons & Oncologists who will look at all the test results and decide what treatment if any would be appropriate.

Radiography seems the first choicebut they are'nt convinced that it wouldexdend her lif by much. jo herself feels that the symptoms are begining race away and she thinks that it may be sooner than later.

If you would like to visit Jo please give me a ring first as she tires very easily. I know she would like to see you all at some stage.

Wednesday 21 January 2009

Thank you

I thank you all for you friendship - now I need you to be strong for Bernie

Jo xx

Very Sad NEWs 1817hrs

Jo rang me to tell me that all the results were in and the Doctors have told her that she has a High Grade Tumor and they give her one year at the most. I'm devastated that they gave her this news on her own. I must dash to be with her as the is in bits.

Buletin 1704 hrs

"Anyone seen my mum"

No visits - I spoke to Jo on the phone late morning, she had had the doctors round the nreurologist said that provided the wound was sufficiently healed she may be able to go home on Saturday as long as she took things realy steady. And there after she could go back to the Horton to await the more intricate test results.

I'll phone again this evening for more of an update.

Tuesday 20 January 2009

Jo special request 2115hrs

The Ward sister just rang me and has asked people not to visit tomorrow because Jo is not upto it she becomes too tired. It is bringing on mini epeleptic fits which they are concerned about. I do not intend to go tomorrow. so please check with me before visiting.

Thanking you in anticipation

Bernie

Up date Jo1914

I visited Jo this afternoon at 3pm, Jo was sitting on her bed trying to read a publishig given to her by the consultant Oncologist - "Understanding Brain tumors".

The results now have been put back to next Tuesday so the agonising goes on apparently there will be a meeting of all the experts on Tuesday who decide what is to be done, the oncologist told Jo that the biggest majority of brain tumors are never removed.

Jo's condition as at 17.30 pm Monday 18th

I visited Jo last evening with Mike & Diane, Jo was quite cheery although her speech had detoraited as a result of the brain beginning damaged thus swelling, which in turn impacted on her speech which was not as good as the day before.,she also tires very easily, sop please bear that in mind when you visit.

She is showing some anxiety for Friday which is the day that she will get the preliminary results. The complete results won't be known till 10 days time.

If you wasn't to know what to take her when you visit she loves fresh cherries.
for those of you that would like to ring Jo she is on patient line he calls are £0.35 ppm off peak 7 £048ppm peak time her number is 07022543055.

Monday 19 January 2009

Buletin Jo 1204 hrs

Jo's biopsy was performed on Friday last. I vis her over the weekend , the doctors were pleased with the proceedure and she rcovering fro the procedure well. The scars are tiny however the bi-opsy was a great success in terms of the material taken.

We will have to wait now for the results in 7 - 10 days.

she' a git teary but that's down to the general anesthetic
I'll go again today at 3.30pm

Saturday 17 January 2009

\\\\\\\\\\jo update 2200hrs.

Jo is sitting uo in bed and has her full colour back , her sence of humour is not diminished,she has had 2 small hole into her head. the surgeon said that it was complete success and the resultsin 7 days.

Jo Update 1104 am

Jo had a good night, last night. off to see her this afternoon,

No visiting today except familly, will update again at 1700hrs.

Friday 16 January 2009

Final bul Friday 2230 hrs.

spoke to recoverey ward, she has come round and is sitting up in bed eating toast. which is a good sign.

very limited visiting tomorrow please ring me first for an update bedfore visiting. Thankyou for all the kind words and messages.

Latest on Jo

Jo has had her bi-opsy, all went well and she is now in recovery in the neuro surgery ward.

She is not allowed visitors tonight. I will be ringing later on this evening to see how she is and will post another update later on this evening.

JO'S STATUS

Taken to hospital New Years Eve with a suspected stroke. New Years Day had tests and established brain tumour. Taken to JR Oxford on 7th January 09 for MRI scan. Results confirmed brain tumour. Biopsy awaited but should be done later today - 16th January 2009. Results may take 7 days.